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shoelady130
shoelady130
Updated 3 days ago
shoelady130
shoelady130
Updated 3 days ago

‼️NEEDED SARCOIDOSIS ADVOCATES ‼️ ENDS NOVEMBER 30, 2022

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I was diagnosed with Pulmonary Sarcoidosis  in 1997 and since that time Sarcoidosis has affected my lungs, heart, eyes, and nervous system. For the last 25 years I have been in search of a cause and cure for this Rare Autoimmune Inflammatory Disease. I am currently volunteering as an Outreach Leader and Patient Advocate for the Foundation for Sarcoidosis Research for our clinical campaign from October through November and We need you help. To ensure Black American sarcoidosis patients are at the forefront of this discussion, FSR collaborated with sarcoidosis experts and patients, known as Patient and Clinical Advisory Committees, to create a survey to provide a platform for Black Americans to share their experiences and insights. Black Americans at least 18 years of age and older, who live in the U.S., are encouraged to take the survey at www.stopsarcoidosis.org/ACTNow or link https://rx4good.qualtrics.com/jfe/form/SV_4MYoU9YGjvAbuJg for the survey to help inform recommendations for improving care and increasing representation in clinical trials. The survey is available now through November 30, 2022, and will culminate in a Congressional Briefing in April of 2023, Sarcoidosis Awareness Month. In some people, the disease may result in the deterioration of the affected organ. When the granulomas or fibrosis seriously affect the function of a vital organ(s)-- such as the lungs, heart, nervous system, liver, or kidneys -- sarcoidosis can be fatal. LOVE MY PFF’S 😍😍😍😍😍😍
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4 Comments
sduer913
sduer913 I have never seen an add like this I have Neo-Sarcoidosis and have had it for 25 years which it has almost took my life several times. I want to thank you for your love and support. Sarah
Jun 02Reply
shoelady130
shoelady130 @sduer913 Greetings Sarah. Keep Fighting Warrior!
Jun 02Reply
dumplinz111
dumplinz111 GOD BLESS YOU! Sarcoidosis is a silent killer that disproportionately affects African Americans. I lost my Grandmother and Uncle to Sarcoidosis and now my best friend has been diagnosed with it. She never even heard of it like so many of us. I'm so glad that my unfortunate experience with this disease can help me to help her navigate, educate and advocate for her health. Medical research is just starting to come to the forefront in trying to find a cure. Stay Strong my Sister💪🏾..
Jun 10Reply
shoelady130
shoelady130 @dumplinz111 Greetings! Your friend is very lucky to have you. I have an army of friends who supported me through my challenging times. Thank you for your kind words and encouragement. Continue to thrive with your friend!
Jun 10Reply
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About the seller

shoelady130

@shoelady130

Last Active: 5 hours ago

View Closet

2126

Listings

700+

Sold Listings

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100+

Love Notes